|Genre||Autobiography (223 pp.)|
|Keywords||Adolescence, Anatomy, Anesthesia, Body Self-Image, Cancer, Catastrophe, Children, Chronic Illness/Chronic Disease, Disability, Disease and Health, Family Relationships, Hospitalization, Human Worth, Illness and the Family, Illness Narrative/Pathography, Individuality, Loneliness, Pain, Patient Experience, Psycho-social Medicine, Scapegoating, Society, Suffering, Surgery, Trauma, Women's Health|
Lucy Grealy, poet, tells the story of her childhood and young adulthood, a twenty year period of overwhelming physical and mental suffering. Yet the author is so resilient, so intelligent, so insightful, and such a good writer that her story transcends mere illness narrative. At age nine, first misdiagnosed and finally identified as having facial bone cancer (Ewing’s sarcoma), Lucy underwent several surgeries and more than two years of intensive chemotherapy and radiation treatments. Pain and nausea, anxiety and fear of more pain and nausea were only part of the ordeal.
The young Lucy became aware of what it is to be severely, chronically ill. Her sisters behaved differently toward her: they were polite. "Suddenly I understood the term visiting. I was in one place, they were in another, and they were only pausing." Even her father felt uncomfortable at her hospital bedside, and Lucy was relieved that he came infrequently.
But being at home was worse: in the hospital the other patients and the staff expected little from her and she felt no guilt or shame; amidst her family, she blamed herself for the tension, arguments over money, and her mother’s depression, even though these elements had existed prior to her illness. Her hair fell out and she became dimly aware that people were staring at her face. Nevertheless, "I . . . was naturally adept at protecting myself from the hurt of their insults and felt a vague superiority . . . . "
Well enough to return to school, Lucy’s disfigured face drew taunts from classmates; she understood finally that she was perceived as ugly and that she would not be loved. Only on Halloween, when she could mask her face, did she feel free and joyful, unconcerned about her appearance, "normal." Her moods now alternated between despair, determination, and escapism. She became convinced that only facial reconstruction and a restored appearance would make life bearable.
During years of reconstructive surgery Lucy evolved complex rationalizations to give meaning to her suffering. Two anchors had stabilized her existence throughout the misery: a passionate adolescent love of horses, and an adult love of poetry. Eventually outward appearance and inner life became harmonious. "The journey back to my face was a long one."
|Commentary||This often poetic account of catastrophic childhood illness and disfigurement provides powerful insights into the nature of suffering. It illustrates the discongruities in how we see ourselves and how others see us, and how development of an identity is influenced by often superficial social signals. The impact of illness on complicated family relationships is well drawn. The adult author gives a good sense of a child’s experience of chronic illness and hospitalization and of the defense mechanisms that one with strong inner resources may bring to bear on what is seemingly unbearable.|
|Annotated by||Aull, Felice|
|Date of Entry||11/06/94|